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  1. EricInLA

    Diagnosis after neck surgeries

    Wow Abijou, I thought I had a positive outlook for someone with this dreadful disease, but you have me beat! You are wearing out the exclamation point key with all your positivity! I agree with you 100%. Of course we all have our moments - and I'm sorry you had to go through two neck...
  2. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Welcome Denise, though sorry you've joined this club. My two twenty something kids (23 and 20) also made their way home for Thanksgiving and we enjoyed every moment. It was a nice weekend and I am thankful for one more year that I can still eat the turkey, stuffing, and my wife's excellent...
  3. EricInLA

    Riluzole what times do you

    I take one mid-morning around 11, at least two hours after breakfast but at least one hour before lunch, and then the second one right before bedtime, which ideally is more than two hours after I’ve finished dinner
  4. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Hi all - Late summer check-in. The kids go back to school tomorrow, so it actually feels like the end of summer. We had fun family trips this summer to Yosemite, and then to NYC (hot!) and the Jersey beach near Point Pleasant. My slow rate of progression continues - my right hand and arm are...
  5. EricInLA

    Go on, Be Brave

    This is a very interesting post - it evokes many feelings and thoughts I've had over the last 5 years. I agree that the most striking characteristic of this disease is the wide range of progression in those afflicted, both quantitatively and qualitatively. It's so unpredictable and varying. I...
  6. EricInLA

    Voice changes, again

    Thank you Nikki - your reply is helpful and peps me up a bit. I would love for this to be merely allergies. I have not tried an antihistamine nasal spray so I will try that. Can't hurt to try!
  7. EricInLA

    Voice changes, again

    About 8 months ago, I posted regarding voice changes I was noticing. At that time I was noticing for the first time a weak, raspy, and hoarse voice, plus fatigue. Especially at the end of the day. It was very concerning because prior to that my disease course had been all limb-related...
  8. EricInLA

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Like @swalker, I have not posted much lately. I'm blessed to have slow progression, so I've been busy just trying to live a (mostly) normal life while this body will allow. We traveled to the east coast last month to see our son who now lives in DC and works on Capitol Hill, and to see...
  9. EricInLA

    Maybe the Marijuana Myth... JAMA and University of Chicago

    Wasn't one of you going to write a book about all your adventures in that beach town back in the day? I'm still waiting for that so I can read it. I should've wasted some time like you guys did - instead I was very serious and goal-oriented and went right into law school and then started my...
  10. EricInLA

    Maybe the Marijuana Myth... JAMA and University of Chicago

    But Al, the vast majority of cannabis consumed in this country is black market, illegal weed. In California the percentage of cannabis that is black market is between 80 to 90%, which means doctors and Big Pharma are NOT profiting in the same way as the drugs with fancy names. So the Big Money...
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