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  • Users: Waker
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  1. W

    Yeah I was diagnosed with Functional Neurological Disorder, basically BFS.

    Yeah I was diagnosed with Functional Neurological Disorder, basically BFS.
    • Waker
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  2. W

    I am trying to let go but it’s hard when you have symptoms.

    I am trying to let go but it’s hard when you have symptoms.
    • Waker
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  3. W

    Sadly I’m still obsessing over fasciculations and doubting whether or not the test was done too...

    Sadly I’m still obsessing over fasciculations and doubting whether or not the test was done too early or if the specialist made a mistake.
    • Waker
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  4. W

    I got the all clear from an ALS specialist. Clean EMG, clean clinical. I suggest you research...

    I got the all clear from an ALS specialist. Clean EMG, clean clinical. I suggest you research Functional Neurological Disorder which is my diagnosis.
    • Waker
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  5. W

    Dr Garneau at CHUM. She is an ALS specialist.

    Dr Garneau at CHUM. She is an ALS specialist.
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  6. W

    A Tale for the Worried Well

    I just discovered that the neurologist who did my evaluation is an ALS specialist in the biggest university hospital in Montreal. I guess she really knows ALS... And still I think but what if she is wrong? Even though she diagnoses and sees ALS patients every day.
  7. W

    A Tale for the Worried Well

    Thank you it’s done! I will try to donate monthly the same amount.
  8. W

    A Tale for the Worried Well

    Thanks guys! I honestly can’t find words to convey how much respect I have for you. And I’m not just saying this. Your kindness is incredible. You are all an example of strength and pure altruism. I want to donate to this board. Could you tell me how to do this?
  9. W

    A Tale for the Worried Well

    I just got a clean EMG. For the last three months, I have spent my days obsessing over the three-letter disease. And I mean obsessing. Spending all my days on forums, Google, all that stuff. Not eating, not drinking. I was 200% convinced I had it. I looked up life insurance, planned to record...
  10. W

    He said my strength was perfect and no atrophy. He said he can’t rule out ALS but that he would...

    He said my strength was perfect and no atrophy. He said he can’t rule out ALS but that he would not have brought it up if I hadn’t. He said he has never seen someone in his career present with diffuse intermittent fasciculations without weakness or atrophy and progress to ALS especially at 33...
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