Search results for query: *

  • Users: rmt
  • Content: Threads
  • Order by date
  1. R

    Past CALS Rollcall

    I find that I sometimes I want to give a quick update but it doesn't seem worth starting a new thread. And I miss hearing updates from the past CALS that were so helpful to me over the last several years. So I figured I'd start a "rollcall" thread for us past caregivers. It has been over 7...
  2. R

    I miss my husband

    I've been struggling lately. I miss my husband so much. I want to remember him as he was before the FTD, and then ALS, took him. Every year I made a calendar with pictures from he and I together. Even last year, I was able to make a calendar with good pictures of the two of us. But I knew this...
  3. R

    Free Items Available

    I have some medical equipment and supplies that I'm hoping to give away or donate. I could deliver to anywhere near Seattle or Portland (or between them). Everything is free. Anything that people don't want, will be donated to the local ALS foundation, nursing homes, etc (whoever will take it)...
  4. R

    One Day at a Time

    It has been a almost 2 weeks since my husband passed away. He went downhill so fast, I still can't believe that he is gone. I spent a week with family and then came home on Sunday night. I've been busy all week getting paperwork and calls done, cleaning up the house and getting his burial...
  5. R

    Goodbye to my sweet husband

    My husband passed away peacefully yesterday afternoon. I was with him, holding his hand and telling him how much I love him. Thank you all for your support over the last few years.
  6. R

    VA Veterans Caregiver Program

    Are any of you using the VA Veterans Caregiver Program? My PALS is a veteran was active duty during the eligibility window. He is starting to require more care and I think we would qualify for the program. It sounds like it provides some very useful things for CALS and possibly a monthly...
  7. R

    NurOwn Phase 3 - Meaningful Benefit

    My husband and I were so disappointed when NurOwn didn't pass the original Phase 3 trial. I had given up hoping it would ever be an option, but maybe there is a glimmer of hope again. <swapped out link--mod> BrainStorm Cell Therapeutics Announces the Presentation of New Analyses from the Phase...
  8. R

    Help using THC for sleep

    My PALS has trouble getting to sleep at night and wants to try THC to see if that will help. He has a feeding tube and can no longer swallow. Neither of us have ever been pot users, so we are totally clueless about what to get. I assumed we needed a liquid, but I see on one of the dispensary...
  9. R

    Thread- moved from Please Help

    @cmilviper, it sounds like your symptoms have all come up in the last 4 months or so. PLS and upper motor neuron dominant ALS tend to start in one area and progress slowly, so having symptoms in your torso, both legs and both arms this fast would be incredibly surprising. It would be an...
  10. R

    Getting a PEG next week - looking for tips

    My husband is getting a PEG on Thursday and I'm looking for tips and advice. I know they are going to give us information and show us how to do everything, but I figure you guys may have advice on things to do and things to avoid. He still plans to eat some by mouth, but I think he will end up...
Back
Top