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  1. S

    Did you have sleep study done?

    Did you have sleep study done?
  2. S

    I'm sorry to bother you but can you explain to me how exactly was this test done? I did one test...

    I'm sorry to bother you but can you explain to me how exactly was this test done? I did one test where I was exercising and they measured my O2 levels before and after. And why they want to do the deltoid muscle?
  3. S

    You said that your CDP is not good. What was wrong? O2 and CO2 levels. Do they suspect something...

    You said that your CDP is not good. What was wrong? O2 and CO2 levels. Do they suspect something cardiological or no?
  4. S

    I'm waiting for my EMG appointment. It should be done sometime in December. Breathing still the...

    I'm waiting for my EMG appointment. It should be done sometime in December. Breathing still the same but I'm concerned about my right foot. When I wear a sock or shoe it irritates me and feels weird, mostly in the foot arc, exactly where my twitches are. What muscles will you get biopsied? Also...
  5. S

    I'm glad that your EMG is clean and FVC is not changing. Let me know.

    I'm glad that your EMG is clean and FVC is not changing. Let me know.
  6. S

    How are you doing? Did they catch your fasciculations on EMG? And my dyspnea lasts, I feel it...

    How are you doing? Did they catch your fasciculations on EMG? And my dyspnea lasts, I feel it while talking or eating even when I am in the swimming pool and water is up to my neck a I feel like It suffocating.
  7. S

    However, on the arch of my right foot I have twitches already for 5 months but they come and go...

    However, on the arch of my right foot I have twitches already for 5 months but they come and go. I literally have to tap my foot several times so those muscles start twitching.
  8. S

    When I was in Berlin this August, doctor tested my hands, legs and one muscle on my thorax from...

    When I was in Berlin this August, doctor tested my hands, legs and one muscle on my thorax from the back and that was it. Also, neuromuscular doctor didn't see fascics when she was performing examinations so she told me that it is very probable that she won't catch fascicultions on EMG since...
  9. S

    In December, I should go for another EMG. The point is that in my country no one does thorough...

    In December, I should go for another EMG. The point is that in my country no one does thorough and whole body EMG. All neurologists test only limbs, not even thorax, neck, throat or tongue.
  10. S

    I plan to go for MIP/MEP tests, but they are not standard tests in Slovakia, so I need to look...

    I plan to go for MIP/MEP tests, but they are not standard tests in Slovakia, so I need to look up where they perform them. Also I need a recommendation from doctor for such tests. My neuromuscular doctor said that she has never seen one case of ALS in 25 years which would start in respiratory...
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