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For those of you who are sole caregivers and you are in a moment of rest between demands--whether it's a scheduled break or just stealing a minute--what do you do to really relax in that moment? How do you release the physical and mental grip of always being on alert and ready for the next...

Hi all, Do any of you here know about any group therapy or support groups that have semi-/regular meetings via video teleconferencing (such as skype, zoom, etc.)? They could be ALS-caregiving related or some other interest/circumstance-in-common type groups and may or not be led by a...

This may be a "preaching to the choir" post here, but today my partner/PALS had her ALS clinic visit today (always a stressful day for both of us) and for the first time we rented a wheelchair accessible van for transport. It was the BEST thing, and we are both over the moon about it! Over the...

Hello all, my name is Erin. My partner Jen and I live in Seattle. Jen was diagnosed with rapid progression ALS in March 2018. She is immobile now with just eye and some jaw movement left. The tv is on all day and all night and Jen scrolls FB constantly. She is so bored. There comes a point where...