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  1. S

    She is at peace

    I am very sorry for your loss, and I am sure it must be very very hard decision for you to let her go.
  2. S

    My beloved father ....

    On 13th Jan 2020 my father soul has left the body. I strongly believe whatever happen is good for him. He lived his life completely independent, never even asked anyone to bring him a glass of water, until ALS, which makes him fully dependent on us. His ALS progression was VERY fast, he was...
  3. S

    Mom diagnosed with ALS weeks after being 'cancer free'

    Has your father tested genetically? Answer is NO. So far I have not seen anyone in my close relatives if they had ALS.
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    Mom diagnosed with ALS weeks after being 'cancer free'

    Sorry to hear about your mother. My father case is almost same. He has bladder cancer and after his Chemo, specially on his last visit they insert the needle in his back which actually he felt hit on his spinal. It was a true case of carelessness but anyway after that his condition was declined...
  5. S

    Stiff Legs

    No. Should I?
  6. S

    Stiff Legs

    I am sorry ... I meant Stiff... And we have a physiotherapist visit him everyday from past 2 months but I don't see any progress.
  7. S

    Stiff Legs

    My father legs becomes very and very stuffed at night, it's so stuffed that he has to wake up. Doctors give him medicine for muscle relaxant but seems that's also not working. Is their anything related to ALS progression or its something different than ALS? Any idea or suggestions? Thanks.
  8. S

    Any updates on Nurown

    I heard Nurown has made some promising improvements in reverse ALS symptoms in patients. Wondering if any forum member have any insight updates like when it will be available in market?
  9. S

    My father has ALS. Could I?

    I am in highly doubts its maybe related to very high stress from couple of years in my body and low testosterone which causing weakness and twitching. But obviously you don't want to rule out the ALS. I have not experiened any muscle function degrades, its only weakness, shrinking in muscles in...
  10. S

    Chemo and ALS

    My fathers ALS symptoms starts right after he done his first chemotherapy. On next round of chemo, his symptoms becomes more worst and then in third round he was almost on wheelchair. We thought its chemo reactions and after various tests and rounds to hospital finally end up at neurologist and...
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