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  1. S

    Neurological symptoms started 25 years ago.....

    I had an impromptu EMG. It seemed kind of informal. I did not undress from street clothes. There was no formality about ensuring the room was the correct temperature - in fact, it was pretty cold in there. I felt like the quick and dirty EMG was intended to try to alleviate my fears of ALS...
  2. 1567643480604.png

    1567643480604.png

    • stuffyearsago
    • Media item
    • Comments: 0
    • Category: Could this be ALS?
  3. 1567643379045.png

    1567643379045.png

    • stuffyearsago
    • Media item
    • Comments: 0
    • Category: Could this be ALS?
  4. S

    Hi Laurie, wondering if you could take a quick look at my BiPAP settings? I had a miserable...

    Hi Laurie, wondering if you could take a quick look at my BiPAP settings? I had a miserable night of feeling like it was suffocating me (again). I don't understand. This link shows my settings and also my latest breathing test showing my MIP/MEP at 42/44: BiPAP settings
  5. S

    Sorry, I meant autonomic testing. I think part of my problem is autonomic storms with the crazy...

    Sorry, I meant autonomic testing. I think part of my problem is autonomic storms with the crazy BP and HR spikes and bouncing and also the breathing that seems to worsen when I fall asleep and into autonomic breathing mode. Also, very sweaty feet - so sweaty all the skin peeled off of them...
  6. S

    Yeah, I have Kaiser, so L-H was around $600 out of pocket but well worth it. The autoimmune...

    Yeah, I have Kaiser, so L-H was around $600 out of pocket but well worth it. The autoimmune test at Stanford would cost me $10K....not sure what to do....need to learn more about what it entails and how it could help me. L-H said Stanford is the only place that does autoimmune testing around here.
  7. S

    Kaiser neuro thinks autoimmune.....I will try anythiing. I want my life back.

    Kaiser neuro thinks autoimmune.....I will try anythiing. I want my life back.
  8. S

    My doc wants to do a trial of steroids on me....not sure when....but first spinal tap.

    My doc wants to do a trial of steroids on me....not sure when....but first spinal tap.
  9. S

    Looks like I was temporarily banned for posting a link for you. Links are not supposed to be...

    Looks like I was temporarily banned for posting a link for you. Links are not supposed to be posted, I guess - I missed that in the rules. Guess it was deleted.
  10. S

    I had the basic blood test for lyme - negative, and yes, have found ticks on me - small ones...

    I had the basic blood test for lyme - negative, and yes, have found ticks on me - small ones, not bitten yet. About 2 years ago, something bit me in the leg, though....in several places, thought it might be nymph ticks....a nest or something....swelled and oozed for a week. Anyway, I am going...
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