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  1. S

    Trying to support from a distance....

    It's been a while since I've posted on here and I need to get back into the swing of things. My Dad has been diagnosed with PLS and is really stuggling with it both mentally and physically. My Dad, my sister (Stephanie on this site), and my Mom (JerryAlex on this site) are all about 1,000...
  2. S

    Now that I've been reading your posts...

    It seems like no one knows for sure if they have PLS. It has definitely been interesting getting perspective from both people diagnosed with it and also family members dealing with it. Apparently my Dad is not ready to get onto this forum himself, but my Mom has been showing him several of our...
  3. S

    Suggestions for a 2nd Opinion

    My Dad has not gone any further than Mobile AL for a diagnosis at this point. Does anyone have a suggestion on where he should go for a second opinion on this? Anyone who specializes in PLS/ALS specifically? I've got Duke and UNC in my backyard. I am wondering if anyone here might know more...
  4. S

    My Dad "might have" PLS

    My Dad has been having problems with his leg muscles for about 4 years now. He has run the gammot of tests and everything has come back normal. Now the doctors are telling him that they feel like it might be PLS. How long can it take to get a confirmed diagnosis? It seems so rare that it is...
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