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    Trying to support from a distance....

    It's been a while since I've posted on here and I need to get back into the swing of things. My Dad has been diagnosed with PLS and is really stuggling with it both mentally and physically. My Dad, my sister (Stephanie on this site), and my Mom (JerryAlex on this site) are all about 1,000...
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    Now that I've been reading your posts...

    I'm with you Geo. I can appreciate the difference but I need to get my Dad to do the same! I hate that you ever had to experience anything close to death and hope that it is in the very distant future for you! I don't want my Dad to have to have a near death experience to appreciate how good...
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    Now that I've been reading your posts...

    You make a great point... about not lying down with this disease! That is the message we are currently trying to get through to my Dad. I sincerely hope that he finds that fire I know he has inside to fight this off or at least slow its progression. It just stinks that anyone diagnosed with...
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    Now that I've been reading your posts...

    It seems like no one knows for sure if they have PLS. It has definitely been interesting getting perspective from both people diagnosed with it and also family members dealing with it. Apparently my Dad is not ready to get onto this forum himself, but my Mom has been showing him several of our...
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    My husband diagnosised with PLS

    Hi Mom. It's great to see you found this place. Now we have to get Dad on here so he can see just how much support he has and realize he doesn't have to go through this alone. Steph said tonights visit wasn't as bad as it has been. Maybe he is starting to come around. Hopefully it was not...
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    My Dad "might have" PLS

    How refreshing.... Wow. It so great to have the outpouring of support and from complete strangers at that. I really hope that my Dad will come around and eventually join a forum such as this one. I believe it would really lift his spirits. Of course, I'm hoping that a more immediate...
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    Suggestions for a 2nd Opinion

    My Dad has not gone any further than Mobile AL for a diagnosis at this point. Does anyone have a suggestion on where he should go for a second opinion on this? Anyone who specializes in PLS/ALS specifically? I've got Duke and UNC in my backyard. I am wondering if anyone here might know more...
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    My Dad "might have" PLS

    My Dad has been having problems with his leg muscles for about 4 years now. He has run the gammot of tests and everything has come back normal. Now the doctors are telling him that they feel like it might be PLS. How long can it take to get a confirmed diagnosis? It seems so rare that it is...
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