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Eric, that seems like such a fun trip; there's nothing like old friends! I'm so happy about your trip to Yosemite. I grew up near there and spent many many weekends there skiing, hiking, and just enjoying that amazing place. My husband and I had our wedding at the Ahwahnee Hotel; be sure to...

Thanks Lisa!

Hello everyone! This is my first time checking in. I was recently diagnosed November 2020 after a few years of symptoms and tests and it's taken me a few months to get over the shock and past all of the initial appointments but I feel like things are settling down. This last week I had a PFT...

Nikki, thanks for the response! When you say "dieting alone" do you mean that losing weight with diet alone is bad but losing it with some exercise is okay? I know we're not supposed to do intense exercise because it can speed progression but I do love easy to moderate hiking and swimming...

Grandtetons2, I asked the neurologist at my ALS clinic if I should start an anti-inflammatory diet for the same reasons you mentioned and he said something to the effect of, "There is no data that shows any particular diet helps but we do find that when our patients start a special diet like...

Shiftkicker, it seems like that is a transcript of the interview I posted from youtube. So yes, it's basically the same one.

https://alsnewstoday.com/news-posts/2021/04/13/scribe-raises-100-million-advance-crispr-therapies-als-neurologic-diseases/ This is fascinating research! Am I right in thinking this will only be useful for FALS until all gene mutations causing ALS are identified? Regardless, if it helps any...

Thanks for the information shiftkicker. It looks like a relatively quick turnaround. Igelb, it would be great if they can decide that soon and maybe have it available next year. Fingers crossed!

This is great news; hopefully it will get approved quickly so it's available to more PALS soon. I wonder if Health Canada is more likely to approve it without a phase 3 trial than the FDA. The article says it was being submitted after "feedback from Health Canada" so I would think that means...