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  1. J

    Diagnosis Process

    Hello Again! After going to the doctor, and after she saw my results, she said this was a motor neuron disease. She said, right now I don't have ALS. She wanted me to take a genetic test. But I'M here asking for your advices. Is this really necessary? She wants to see if this is sporadic or...
  2. J

    Diagnosis Process

    Hello All! Today I had my EMG. I brought bad and good news. Good news: Genioglossus EMG NORMAL ... UPPER TRAPEZIUS EMG - NORMAL. BAD NEWS: - Bilateral peroneal Axonal degeneration observed during motor neuro conduction, not alteration found in the rest of the nerves. - F waves translated into...
  3. J

    Hell Yes... My neurologist sent lorazepam and paroxetine .... :) I'm feeling good ... My speech...

    Hell Yes... My neurologist sent lorazepam and paroxetine .... :) I'm feeling good ... My speech actually got better... But definitely anxiety is not causing the weakness in my pharynx constrictors.
  4. J

    We are all in this together ... It is a terrible journey, and it is even more scarier because we...

    We are all in this together ... It is a terrible journey, and it is even more scarier because we are beginning our 30's.
  5. J

    My EMG was clean ... muscles of the face, under the chin (but I believe that He didn't perform...

    My EMG was clean ... muscles of the face, under the chin (but I believe that He didn't perform it well) ... both arms ... it all was clear .... I hope the same results with the one that is coming
  6. J

    Thursday! I'll let you know! the outcome. Though I had an EMG, like 4 months ago ... but my...

    Thursday! I'll let you know! the outcome. Though I had an EMG, like 4 months ago ... but my neuromuscular doctor didn't trut the results because she is convinced I have fasciculations in tongue (I don't see them!) :)
  7. J

    I don't know! ... Well, during 2016-2018, it was just dysphagia. But during 2019, dysphagia...

    I don't know! ... Well, during 2016-2018, it was just dysphagia. But during 2019, dysphagia progressed and some words were difficult to say, but I don't speak in a slow way though, actually I can speak rapidly... Doctor found weakness in my tongue, and she said it had atrophy and fasciculations...
  8. J

    Diagnosis Process

    Thank you all ... I appreciate your comments ... Yes, I'm male. 29 years old. It is frustrating when doctors don't believe you and they say "it is in your mind". But what can we do? :) Since April 2019, I'm very depressed ...thank you again
  9. J

    Diagnosis Process

    doctor said to find “which motor neuron disease” could be ... but i know that when atrophy and weakness are present, well we all know the final diagnosis. Thanks for your comment. I want to cry. I’m no that strong.
  10. J

    Diagnosis Process

    Hello! I tried to write in my previous thread, but it was closed. I started having dysphagia in 2016. In April 2019, it progressed. In October, it progressed. Videofluroscopy showed mild weakness in pharynx, epligottis and reduced tongue retraction. January 2020, my "n, d, l" words kept...
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