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Hi everyone - again! Concerned about Bulbar. Trouble swallowing solids and accidentally biting cheeks, inside of lower lip and tongue since January. Some neck discomfort. No speech changes. No tongue facs and no weakness in limbs that I can discern. What does Bulbar onset swallowing feel like...

First thread Second thread A year and a half ago, I had fasciculations and odd twitching, humming sensations, etc. Went to GP, referred to neuro who discovered I had hyperreflexes everywhere. Very brisk to the point I had trouble writing, etc and my knee reflex was extreme. I made the...

Thank you Laurie. I continue to appreciate your time and compassion.Tom

Thanks so much for providing this forum. I've learned so much and really appreciate your time and effort in responding. I understand that is difficult. About a year ago I posted my concerns after experiencing facs in my calves (both) and an uncontrolled tremor / clonus in my right foot. My...

Hi all. First, I want to thank all of the pALS who responded. Your advice and suggestions were very helpful and I appreciate the time and effort and most of all the good wishes. Second, I wanted to let everyone following this thread know that after visiting Mayo Rochester I’ve not been...

Thanks Ken - all signed up and did the questionares. Leaving tomorrow.

Fair question - I certainly hope so on both accounts. Regardless of the outcome it’s become apparent to me that the old adage that life is 90% of how you react to 10% of what actually happens is unquestionably true.

Thanks Nikki - I will certainly do as you suggest. I have found your responses both practical and comforting at the same time as I’m sure others have as well. Thanks Cody - intellectually I think you make a good point. Problem is my anxiety has told my intellect to go sit in the corner and...

Any thoughts on preparing for my Mayo trip? I was told to bring all my imaging discs, reports, blood work records,medications,etc but the impression I got was Mayo will want to do their own tests and exams anyway. Post visit and assuming a diagnosis what do I need to bring home? I assume they...