My husband has had non-stop twitching, primarily in his legs, for 7.5 months. He has lost multiple family members to the c9orf72 gene and discovered he also carries the gene after several months of twitching. The hope was to find out that he didn’t have the gene the twitching was anxiety...
Thanks for your reply, Nikki.
We're aware of the recent findings about vigorous daily exercise and he's scaled back but at this point is also using it as a daily strength test to keep his anxiety in check by knowing he's not lost strength. He makes sure to take frequent rest between sets and...
Hi Everyone,
My husband is 35 years old and has lost a cousin, an aunt, 2 uncles, (all to ALS) and currently watches his mom battle the final stages of ALS. His family carries the c9 gene.
Upon visiting with his mom over Christmas (they live out of state) and spending a week surrounded by ALS...
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