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Though he only posted here a few times, I am heartbroken to say that Scott Smith, an amazing advocate with two young toddlers and eloquent chronicler of his journey through his Scott Fights ALS blog, passed away today In Kansas City. I encourage folks to read his amazing blogs over the past...

Hi all. I must say it feels a bit odd posting in this forum after more than three years exclusively in the pALS section. Unless this post stimulates posts or questions from others, I will continue posting in the ALS forums as before. The reason I decided to post here at least this once is the...

The benefits and side effects of Riluzole have been discussed at great length here and on other forums over the years. However, I continue to be surprised at the number of pALS and many neurologists still citing results from the original studies that showed only a very modest life extension of...

This has been said here many times, but the number of people on social media claiming (fill in the blank) treatment reversed their symptoms is just too much. I saw a post on a Facebook page devoted to ALS from a fellow shouting to the rooftops that he is the next Bedlack reversal because he has...

Hi all. The previous threads about Clenbuterol are closed, but I did want to check back with any forum members taking it to see if they noticed any effects. Thanks, Kevin

I just read where Dr. Robert “Doc“ Sinnott died this past week. Doc was a well loved colorectal surgeon from Pennsylvania that was diagnosed about four years ago, and his wonderful presentation about his diagnostic journey at the March 2019 ALS Hope Foundation was one of the first videos I came...

Hi everyone. This fairly long story may seem self evident, but it can’t be stated enough—which this site strongly emphasizes—to always get second or even third opinions when seeking an accurate diagnosis for not only suspected MND but for any neurological issue. Most important, seek out a...

Hi everyone. I believe Nikki touched on this in another thread, but I had a zoom call with my neurologist this morning and he told me that they are doing away with “clinically possible, probable, and definitive“ categories and now will diagnose as “either you have ALS or you don’t.” The EMG...

Hi all. I just read an article re: a recent lawsuit settlement in which residency is no longer required in Oregon for Medical Assistance in Dying. Wondering if anyone else has more information.

I wanted to alert everyone not to rely solely on the rapid antigen tests for the new variant. My 28-year old daughter, who has been fully vaccinated, including the booster, and who works at the Department of Health, had a rapid test along with her boyfriend (also fully vaccinated) a few hours...