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  1. M

    Lost my mom

    I lost my mom 3 weeks ago. She was dignosed with genetic ALS - C9 in January 2019. It’s been a long road and she was very miserable the last couple of years. Everything was stripped from her and she was scared and in pain. About 9 weeks ago she slid off of a bed while getting cleaned and broke...
  2. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
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