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Hello, My state just legalized Medical Cannibus. I understand that it helps with the legs spasms, drooling, nose dripping ect,. Does anyone know if it truly helps and what is the procedure that you must go through with the neuro. I'm sure this topic has been beaten to death on the forum but I...

My husband was diagnosed with PLS 5yrs. ago. He had all the tests that they put one through and he had a brain MRI at that time. His symptoms started in his right leg with his knee kicking back when he walked. Since then he has weakness in both legs, clonus in both feet, weakness in both his...

My husband is loosing his ability to speak and his motor skills almost prevent him from writing. What kind of electronic device with a keyboard is out there that is small and can be held with one hand and is very simple to understand and use? He won't use a laptop computer so I am looking for...

Hi Everyone, On the 23rd I saw a news release that scientists found a common cause associated with ALS, Parkinson's, Alzheimer's. It had to do with protein clumps in the brain? Did anyone else see it and if so what did you think? Sounded to me like they now have it pinpointed to the cause and...

Well things are certainly getting harder to deal with. My husband has been in a distinct decline since diagnosed 4 1/2 years ago. Recently he has had bladder urgency and when one doesn't move very fast can be a real urgent problem. I have noticed his ankles have been swelling but not sure if it...

Hello my name is Gracie, my husband has been diagnosed with PLS 4 1/2 years ago. He has dramatically progressed every year. Within the last 6 months his speech has been effected. He slurrs his speach, sometimes his tone is lower and I have noticed when he talks he seems to run out of breath. A...

My husband has been diagnosed with PLS 4 yrs ago. He has been progressing at a pretty rapid rate this year. He has stiffness and weakness in both legs he said walking feels like he has 100 pound weights on each leg, knees kicking back in both legs and clonus in both feet. This year he has...

My husband's neuro prescribed Rilutek at a wooping cost of 1,069.99 a month retail from our pharmacy. We do have insurance however we only have a cap of 2800.00 yrly, the total cost will be ours in 2 months plus the cost of all the other meds such as Baclofen and pain meds. In my research I...

Hello, My husband was diagnosed three years ago with PLS. However, I am not so sure it has remained PLS. He has progressed a lot this passed year. He has clonus right foot, and now left also. He has babinsky in right knee and now left knee is buckeling. His right had is so week he can hardly...

Heads up friends, today my husband had his 3 month check up with his primary doctor. Before the doctor came into the room his nurse asked us if my husband was getting his flu shot today. Well of course we said yes and she gave him the shot. When the doctor came in the room he said my husband...