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  1. K

    Congratulations on finding a good solution for your problem. I agree, we shouldn’t be spending...

    Congratulations on finding a good solution for your problem. I agree, we shouldn’t be spending time on here. Be well.
    • Kinabe
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  2. K

    Thank you so much for responding. I noticed my gait change about 3 weeks ago and it has been a...

    Thank you so much for responding. I noticed my gait change about 3 weeks ago and it has been a real challenge. As of yet I don’t know the cause. I don’t think it fits foot drop. I’m getting an MRI of my lumbar region, starting PT and getting referred to a Chrio for now. I’ll hope for the best
    • Kinabe
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  3. K

    How did your foot drop present? Was is sudden? Did it include pain? Thank you!

    How did your foot drop present? Was is sudden? Did it include pain? Thank you!
    • Kinabe
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  4. K

    Of course, I’m worried about foot drop. As of right now, there’s no sign it’s actually weakness...

    Of course, I’m worried about foot drop. As of right now, there’s no sign it’s actually weakness of the tibialis anterior. I can eat on heels, jump (even hop up stairs on that foot). I saw a walk in clinic who said possible sciatica style nerve compression, and I haven’t been diagnosed with...
    • Kinabe
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  5. K

    Hi there, I just read your update on foot drop! Excellent news! If you get a moment, could you...

    Hi there, I just read your update on foot drop! Excellent news! If you get a moment, could you check my latest posting in the could it be als section? I also had an ALS scare a few years ago. I had an EMG at 11 months in back in December 2019 and nothing sinister was found. Anyhow, very...
    • Kinabe
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  6. K

    Recent gait change after long term twitching, strong pain in tibias anterior.

    Thank you and I do appreciate the time taken to respond. I have become very committed to supporting ALS research as a result of my experience both as someone who lost a relative to ALS and who has feared it myself. Good luck to all and best wishes. If I get relevant test information I’ll report...
  7. K

    Recent gait change after long term twitching, strong pain in tibias anterior.

    The Neurologist I had do my EMG in December of 2019 has retired. It may take me quite some time to get care. I’m in a remote area with low access to health care. I have read of extremely rare cases of ALS Presentation that could take years to develop. That’s what my concern is about. I have a...
  8. K

    Recent gait change after long term twitching, strong pain in tibias anterior.

    I decided in advance not to mention my concerns about ALS and to just let the process play out. Thank you for the advice. I know that very rare slow progressing cases exist. I’m hoping I have a sciatica style nerve compression or some other disc issue.
  9. K

    Recent gait change after long term twitching, strong pain in tibias anterior.

    I'm sorry to start a new thread. I am 35 months into problems with widespread twitching and other issues. I had an EMG 2 years ago, 11 months into the problem, which found no evidence of ALS. I haven't been seen by the neurologist or even a GP for these issues since then. I have continued to...
  10. K

    21 Months into Body Wide Twitching - Still not diagnosed with ALS

    I'm sorry the title was taken that way. I actually meant it as a more positive note - that despite twitching every day for that long of time, it hasn't progressed to a point where ALS is suspected. People are so afraid of their twitching. I myself am still scared some days. But the good news is...
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