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I would like to hear from any pALS or cALS or survivors who have any knowledge or experience with these kind of policies. I know that they are small benefit policies (> 40000$), and that the premiums are exorbitant, and they won't pay until after the owner has had the policy for two years. I am...

I would like to hear from any pALS or cALS who are living with a trach. I understand the medical and technical side of it, but I am interested in hearing the nitty-gritty ramifications of living with all of that at home. The real stuff. How do you staff, are there lay person family members...

My understanding of Neudexta is that the dextromethorphan is what helps PBA. If dextromethorphan is the active ingredient in Neudexta, and quinidine is only there to slow the metabolism of the DM, shouldn't any sustained release form of DM be helpful? Quinidine interacts with other meds that can...

Tobii rep said bifocals with line don't work well with their eyegaze technology. My 50 year old eyes need help. Have any of you used progressive lens glasses with a Tobii? How was your experience? Do any of you have advice?