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Thank you so much for those suggestions. I will definitely give email a try. Had I not insisted on copies of his test results I would have never known his PI and PE values as they said everything was fine. Now it appears that he should have been given a bipap. It makes me wonder how much...

Yes, we have a PVA rep and he was great at getting my husband approved but now doesn’t answer or return my calls. It seems like it is an uphill fight for everything. We contacted Dr Appel at Methodist and they will require my husband to go through lots of testing before accepting him to clinic...

Thank you for helping me understand this. He is a veteran so we use the VA. They don’t have an ALS clinic at this hospital so I’m concerned about how much experience they have with ALS patients.

Laurie, There is nothing on his test results that says MEP or MIP. There is a category that says Respiratory Muscle Force. Under that are 4 categories, PI Max, PE Max, PI Volume and PE Volume. PI MAX is 36% and PE Max is 25. Is that the same thing? The other part of the test is Spirometer...

My pals was diagnosed in 2018 with symptoms going back to 2013. Very slow progression. He has slurred speech, fasciculations and this week has his first PFT due to chocking and swallowing issues with constant coughing. Spirometer results were all 80% e crept PEF which was 47. However...

My husband was diagnosed a year ago with ALS. Mainly voice changes, slight walking issues, balance, fasciculations, etc. Dr said it was slow progression as he has had symptoms about 4 years. Lately, he has had some chocking and coughing. Has not had any lung tests. Had him use my flow meter...

I just received a text from PVA and my husband’s claim has been approved and we should be getting a letter in the mail making it official. Quite a relief!! I appreciate all your info and wisdom. I have new questions. My husband is not involved in a clinic. There are 2 ALS clinics here in...

Wow, approved in one day. That was awesome and certainly less stressful.

Thanks for the info and advice. I appreciate the help. I can’t imagine having to go through all the things some of you have had to endure and take care of my husband too.