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Hi folks thanks for continuing information. As I said the clinical trial coming up is on oral Edaravone so that may suit your lifestyle better if its something to consider Doglady. Again its your own decision on your own life choices. Thanks again and KEEP FIGHTING Seamus

Hi Folks thanks for information. I think Nikki is right it is a case of different horses for different courses. As my Neurologist who is Professor Hardiman says she thinks precision medicine is the way forward. THE RIGHT DRUG, FOR THE RIGHT PATIENT, IN THE RIGHT DOSE, AT THE RIGHT TIME. So...

Hi thanks for info, so the feedback seems to be generally positive to a certain degree with regard to Edaravone. Is it that its more effective in slow progressors? Does anyone have anything to say about it? The more I read about trials the more it makes sense to stratify PALS into cohorts and...

Thanks very much for your information, it is very helpful and I would be very grateful if you keep it coming. There is another trial starting here were they are looking at antiviral drugs which might be worth looking at called Lighthouse 2. It has shown some promise but I think its only in...

Hi first time on this forum. Seamus from Ireland diagnosed1year but symptoms about 4 years, 49 married 4 kids. What I would like to ask people is about Edaravone. It has been in use in the US since 2017. It is not available in Europe yet but there is a large clinical trial this year on the oral...