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  1. B

    My kids will be orphans 😕

    Thank you all for your warm welcome. I have the C9ORF72 mutation. I have support for myself through my partner, Keith (56yrs old) though I’ve decided that due to poor relationship with my twins the children will live with a friend and her family. We are in the process of buying another house as...
  2. B

    My kids will be orphans 😕

    Hi. I’m 46 with a 9yr old daughter and identical twin boys who are 7yrs old. Their father died in 2016 and I’ve been diagnosed with MND (ALS) jan 2018. I’m from Australia and my mum passed away November 2018 from MND. I have the gene. I have 5 siblings. Only one other has had a gene check and...
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