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Just thought I would update those who responded to my post. I received the results of my genetics test last Tuesday and it turns out I have Pompe disease. My doctor is sending me to a teaching hospital and I should hear from them sometime this week. I am scared because I don't know what the...

Thank you all for letting me share my fears. Good luck and God bless.

Thank you so much for replying. I have so much going on that I honestly think that is why my doctor hasn't diagnosed me yet. I think he is looking for one underlying cause that is creating all of the other problems. I am just thankful and my mind has eased a bit by your comments that you don't...

Thank you Karen. I will talk with my doctor about seeing a rheumatologist. They post all of my tests online and I have access to the results. The test that they checked for rheumatoid said negative. I am not sure of its name but when I googled it, it said it was for rheumatoid arthritis. My...

Thank you so much for your reply. I tested negative for rheumatoid arthritis. I do have osteoarthritis in my hips and knees. After the fall and steroid injection ruons, I had about three days of course stant muscle spasms and electrical shocks all o we my body. Then it calmed down but I still...

So glad I have found this group. I have some serious symptoms and questions about tests that I hope someone can answer for me. In April of 2017 I started falling for no reason. My knees would just buckle and down I would go. I fell at least once a week thmonth of April. Then I would go about...