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  1. J

    Anybody involved in Genentech trial

    Dual zipper kinase therapy looks promising. I believe they have completed enrollment in P1. Just wondering if anyone has feedback
  2. J

    Bodywide Fasciculations, cramps for past 8 months

    Mines are bodywide....though more in both legs and the frequency is what really bothers me. They are completely nonstop. Can someone tell how bfs fascics differ from ALS fascics? I’ve read that ALS is much more frequent and constant.
  3. J

    Bodywide Fasciculations, cramps for past 8 months

    Thanks for feedback everyone. Definitely less than 5. I think I’m just going to unplug from Dr. Google and enjoy a beer.
  4. J

    Bodywide Fasciculations, cramps for past 8 months

    I actually did see a neurologist. She has me schedule for an EMG. She said that there was no muscle weakness but did find a clonus. What is the relationship between fasciculations and clonus? Does mean MND is more likely?
  5. J

    Bodywide Fasciculations, cramps for past 8 months

    Happy to say no weakness other than rubbery legs but I’ve read that some ALS presents as sudden widespread fasics. Needless to say this is freaking me out. I’ve also read that ALS fascics are very frequent. Mine are nonstop and occur every few seconds. Every day is a new symptom. I have...
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