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I haven't been on in a while. ALS continues to rob me of function. I have lost all use of my arms and legs. I only have small bit of function in my right hand. I have just started to have bulbar involvement. Last week I signed with Hospice. This way my NP wife will get some help and respite...

I am getting a new F3. What type of seat cushion would be best? Quantum TruComfort 2, ROHO, etc?

Lately, I have been experiencing a lot of pain in my upper left arm and left hip. There is a constant throbbing and, sometimes, a very sharp stabbing pain, especially if I move the limb. My wife works on ROM once a day with me. That is always painful. What do PALS here do about pain? James

I have now reached the stage where a wheel chair and van combination are needed. My neurologist just wrote the prescription for a wheel chair yesterday. The ALS Society is going to loan me a Permobil F3 until I can get one of my own. Which type of wheel chair (and options) do you prefer? What...

I have been taking riluzole for about six weeks. During this 6 weeks, I have been more fatigued than I ever was in the past. Is it possible the riluzole is causing the fatigue.?

I've had a Trilogy 100 for a month, even though I have no problems breathing. When they tested me a month ago, I was at 90 and 64. But they kept having me blow over and over until I finally blew one under 50, which qualified me for the Trilogy. The RT came to my home and setup the Trilogy. She...

I first started having symptoms 3 years ago. It started with a little left leg weakness and fatigue. My PCP said I was just getting old and that being tired was a symptom of every disease. Over the course of 3 years my left leg got weaker and weaker, and the fatigue continued. My PCP...