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I haven't been on in a while. ALS continues to rob me of function. I have lost all use of my arms and legs. I only have small bit of function in my right hand. I have just started to have bulbar involvement. Last week I signed with Hospice. This way my NP wife will get some help and respite...

I am getting a new F3. What type of seat cushion would be best? Quantum TruComfort 2, ROHO, etc?

As a lawyer let me just say, this type of thing is not uncommon. The judge should be reported. He violated the canons of judicial ethics by engaging in exparte communications.

I notice when I wake in the morning my eyelids don't want to open right away. It can take 10 seconds to finally convince them.

Chally, You're an inspiration. Sorry to see you go s soon. James

Thanks to all who offered advice. I learned a lot from this discussion. I'll be trying some of the things mentioned.

Lately, I have been experiencing a lot of pain in my upper left arm and left hip. There is a constant throbbing and, sometimes, a very sharp stabbing pain, especially if I move the limb. My wife works on ROM once a day with me. That is always painful. What do PALS here do about pain? James

Hi Juri, Welcome.. I would love to hear more of your story. Jim

Emanol, I am 3.5 years from onset. I score around 38. My progression has been slow but seems to be speeding up. Most of my involvement is limb only, with my left side being weaker than my right side. I have no bulbar involvement. I am doing everything I can to go as far as I can. I use a...

I am a PALS. I've lost the use of my legs, but have the use of my hands and arms. I have no bulbar involvement yet. Today, my first wheelchair is arriving, along with a hoyer lift. I am lucky, in a way, that my caregiver-wife is also an NP. I defer to her completely, except as to issues...