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I have wanted to send this out, but oh how difficult this is to type it. I first found this website forum, 5 months ago, when my mother-in-law started falling rapidly to ALS. I asked some of you ? on the feeding tube, on cramps, and just to share the pain i felt of not being able to take it...

Quick ? MIL still not sleeping and only getting 3-4 hours of sleep a nite, she seems just not able to sleep, some cramps and just can not rest... Also feeding pump, makes her get up quite often to use the restroom.. its only 237 ml in 5 hours.. not much, but she feels its the pump.. i thought i...

stress factors do they advance the disease. My MIL has ALS (Bulbar) and her spouse just passed away. She seems to be going down hill more days than not, i read a post on stresses and how they can push the disease quicker, we seem to be struggling more with verbalizing, take a swallow and just...

THank you Thank all of you, the food versus formula, the Change of formula idea and of course the soap. She just swithed formulas and its somewhat working, i have suggested doing real food, and she is very apprehensive to try it, old school of thought.. mouth is for food, dont want to lodge...

thanks for all the suggestions thanks for all the info for my MIL, i hope it will help to just experiement with the formulas. She seems to want to try to change things, i was concerned she was getting too depressed to try to feed herself. She is currently being fed via the tube from family and...

New leaf with tons of ?. Thanks Rhonda and Jimercat, will try the gatorade. Got the new formula yesterday, less jitters than original but still has jitters. Did some soup, no jitters, but is very very hesitant to try food. I think the idea of venturing is too overwhelming. Trying not to push...

Mother-in-law just diagnosed, would love some help on a few ? Diagnosed 3 months ago, however symptoms were not pinpointed for nearly a year. 3 weeks ago, got feeding tube and its not going so well.. Gets the jitters after being fed via the tube with the jevity formula given to us.. We are doing...