Search results for query: *

  • Users: LUTHER
  • Content: Threads
  • Order by date
  1. L

    Diagnosis was just as bad as ALS

    I came back to update after 19 months, where I wrote “ I feel so helpless”. Finally got diagnosed with Multiple System Atrophy. My current situation is complete autonomic system failure, which is closing my breathing and at any moment, by brain can stop sending signals to breathe. It’s a cross...
  2. L

    Update from I feel so helpless

    Previous thread here. Good evening. Just got my second Emg. This one was done at a ALS specialist hospital accredited by the ALS Association. The Dr was extremely thorough and explained everything he did. It took about 2hours and he checked every where except my eyes! Conclusion was Mildly...
  3. L

    Get a good neurologist !!

    I know my previous thread was closed. I only sent this to say I have to start all over because the neurologist I seen completely lied on my evaluation. So much that when my PCP seen me, He couldn't recognize that this neurologist didn't see all the atrophy, difficulties breathing and swallowing...
  4. L

    I feel helpless

    For the last four months, I have experienced a rapid decline in health. It started with severe constipation, in which after every series of gastrointestinal test, nothing was found,except that my parsistalsis had slowed tremendously. From that point I began having problems with my legs, numbness...
Back
Top