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    Goodbye Mr Twinkle.

    Thank you all very much. It has been 18 days since Peter passed away and everyone of those days has been upsetting. It's really hard to get up in the morning and go about my daily life. I wish he was still here with me. I miss him so much, 30 years together is a long time together. He was the...
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    Goodbye Mr Twinkle.

    Thank you all xx
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    Goodbye Mr Twinkle.

    My darling brave husband passed away last Wednesday at 13.22pm. He was so ill in hospital, but he proved himself to be a fighter for 30 days whilst suffering from bulbar mnd, pneumonia, sepsis, and a lower bowel perforation. I am so undoubtly proud of my husband. His name was Peter, he was 58...
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    Slipping Away

    No, they're 28, 27, 23, sorry typo mistake. Today we found out hubby had a perforated lower bowel and infected scrotum. They can't operate on the perforation, he's to be given anti-biotics and wait and see. My poor hubby is certainly going through it that's for sure. He's still battling...
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    Slipping Away

    Mike, my kids are age 27, 27, 23, we're all extremely close to one another. There's hardly any morale left, I will always fight for my hubby despite those 3 letters of MND which is like a black plaque the way drs/consulatants/nurses see my husband. He was refused ICU twice because of the MNF
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    Slipping Away

    Hi all. I feel it wont be long until my husband is set free from the horrid disease. He's been in hospital now for 4 weeks with pneumonia and sepsis and is getting worse. I've no-one to talk to about it, I don't want to be so upset to my kids as they aren't coping at all with their dad's...
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    Diagnosis At Last

    Thanks all for your replies. Yes, I'll give him time and not to push it having visitors or going out. He definatly needs a feeding tube soon as he's struggling with the 10 tablets to take in the morning, 5 in the afternoon, and 4 at night. Most of these tablets are the slithery type which goes...
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    Diagnosis At Last

    Our kids are aged 28, 27, 22 so they're all here to help out. Yes, I know that a stair lift will become useless for hubby as he gets worse, it won't be upto me though what's installed in our house. I will explain though that a stair lift won't be used for long.
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    Diagnosis At Last

    Hello everyone. My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him. He started to talk slowler than usual in January this year, and gradually got worse over the months...
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