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  1. M

    Going on 18 months with symptoms no diagnosis

    One more question. If I may..what do muscle fasiculations feel like?? Mine feel like it does when I was pregnant,,,,like a little hand or fist pushing out..no pain...always popping up in different locations..mostly calves and ankles..sometimes feels like a rippling
  2. M

    Going on 18 months with symptoms no diagnosis

    I will do that..I see him every 3 months now unless I have a new symptom. Thank u for answering..I appreciate it..I try not to b scared..I'm definitely confused and frustrated
  3. M

    Going on 18 months with symptoms no diagnosis

    I don't have a copy..they tell me it's a concern but not definite on als diagnosis..it's a wait and see..
  4. M

    Going on 18 months with symptoms no diagnosis

    I'm sorry to ask another question.my name is lisa. I have both upper and lower motor neuron symptoms..is there any other diseases with both?
  5. M

    Going on 18 months with symptoms no diagnosis

    Ok..I'm sorry. I don't understand the forum fomat..I will see if someone in my dreams office can explain..I have had 2 emg..I didn't know I could get a copy
  6. M

    Going on 18 months with symptoms no diagnosis

    Thank u so much..it's hard not knowing..sometimes I feel like I'm going crazy..how do I make friends on here?? I am new to a forum
  7. M

    Going on 18 months with symptoms no diagnosis

    I have hypoglossal nerve palsy, fasiculations in tongue at all times..hyperreflexia. slurred and garbled speech off and on . Have seen 2 neurologists..have had 2 mri, 2 nerve conduction tests, 2 muscle tests ( can't think of name) , book tests, CT scan....I have crampy twitching legs at night...
  8. M

    Can anyone answer my question whether some people take longer to diagnose

    Can anyone answer my question whether some people take longer to diagnose
  9. M

    My name is lisa .im seeing my second neurologist..I have had 2 nerve conduction tests, 2 of...

    My name is lisa .im seeing my second neurologist..I have had 2 nerve conduction tests, 2 of those muscle tests, blood work, 2 mri and CT scan I have hyperreflexia, atrophy of tongue, slurred speech and tongue fasiculations..also crampy legs at night with twitches..has anyone heard of going on...
  10. M

    New consultation on als

    I have appointment on Monday at noon..I believe the neurologist I'm seeing is the medical director there..they said they squeezed me in...unfortunately I haven't received paperwork in the mail they were sendong..hope mail comes early on monday..otherwise I hope they give me time there..do u...
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