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    After months of lurking, I'm officially here

    Karen- you have questioned everything I have! The biggest thing being I feel much better in the evening, than in the morning, and seem to have more strength! My local neurologist still does not think it is ALS, but defers to the experts at Mayo. Mayo, from Day 1, felt it was ALS. My first EMG...
  2. G

    After months of lurking, I'm officially here

    Nikki- thank you so much for the welcome. My name is Dallas, but I am proud to finally be a grandma, he calls me grandma D. So Dallas, D, Grandma all work!
  3. G

    Diagnosis At Last

    I have Bulbar onset, and have always been a talker, so I can relate to your husband. I have found that when I feel comfortable around people, I am able to relax and talk easier. You do notice people mouthing what you are saying! Encourage him to slowly talk to more people, and as they understand...
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    After months of lurking, I'm officially here

    I've been lurking here for about 6 months, mostly to be able to say, "oh good, that doesn't sound like me!" But, as of September 24th, I became an "official PALS". Not a club I wanted to be part of. My symptoms started with excessive yawning, and the inability to sing. Like I sang a solo on...
    • Grandma D
    • Thread
    • ability atrophy back baclofen bed bulbar clinic emg finger hope knee pain muscle muscle wasting pain riluzole slurred speech speech supplement swallowing symptoms tongue tongue atrophy wanted weakness
    • Replies: 11
    • Forum: Newly diagnosed
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