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  • Users: KiraM
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  1. K

    Neuromuscular referral

    This is just an update.. My GP is sending me to a neuromuscular specialist in Omaha. He is concerned about all my symptoms and simply stated “I’ve tested most things I can test, and it’s simply out of my knowledge range.”. I’m grateful for him, I had a pulmonary test that came back fine so...
  2. K

    Just want your support...

    You’re all going to think I’m crazy..I know. I promise I’m not chasing this disease. I just want support through my journey. I just want to ask if I could hang around here with all of you, I love all of you. Your stories inspire me and talking to you all makes me feel so much less pain. It helps...
  3. K

    Got my EMG today

    Hey all, hope you’re doing good today. Just to prefise, I’ve calmed down since my last post, and I’m taking the necessary steps to find out what’s wrong with me whether it be anxiety or something else. So I got my EMG today at NMC, by a neurologist that specializes in ALS/MND, so I’m sure it was...
  4. K

    17 years old, showing symptoms

    Just wanted to say that I look up to all of you amazing people, you’re truly angels on earth. Anyways, figured I’d post here because frankly I’m pretty terrified. I am 17 (f), I do know how rare it would be for me to have this disease, but I am experiencing symptoms for which I’ve not found...
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