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    Als fear Got me worried sick

    I know I am being told to wait to my EMG before posting again but, I am now experiencing full blown twitches in my arms. 6months ago it was only calves and feet. Clearly what ever neurological disorder I have is spreading up through my body. The top of my shoulders and even my face have began...
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    Als fear Got me worried sick

    Hi just an update, I have had a second opinion on my symptoms from a different neurologist who gave me over an hour of his time in our first consult- told him full story showed him videos of twitches and hand tremors and he took copies to show his colleagues. His conclusion that it is not...
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    Als fear Got me worried sick

    Hi Here I am with an update. I would like to say that I am still confused. The neurologist I saw did not even really give me the time of day when I saw him. I’m not sure if you can appreciate my perspective, but when you are generally worried about your health and you work with a health...
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    Als fear Got me worried sick

    Hi Kim T I have seen a neurologist and my appointment on Tuesday will be my third, but 5 months since my last. I have confirmed significant atrophy in right calf muscle from physio I have been seeing post ankle surgery. Her opinion is that there is too much deterioration to be normal, even with...
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    Als fear Got me worried sick

    Hi Nikki the question below was meant to be for you.
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    Als fear Got me worried sick

    Thanks for your reply Tillie, but wouldn’t the fact that twitches have recently began in my arms, my twitching fingers, the burning feeling I get in my shoulders when trying to write on the board at work and swallowing issues as described in my first ever post be signs of UMD Problems?
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    Als fear Got me worried sick

    Hi everyone, So my neuro appointment in five days. Contraction fasciculations pretty wild in calves and thighs. Please check out my videos on YouTube. Do these still look like benign fasciculations? I am feeling doubtful. https://m.youtube.com/watch?v=qDkzeeB31RM...
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    Als fear Got me worried sick

    Just an update. Back to neuro on the 9th of October. I will be assisting on EMG and strength testing. Just noticed today that my legs all the way up fasiculate continuously no breaks really between them and when stretched or strained get worse and easier to see. I really am on the verge of a...
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    Als fear Got me worried sick

    I don’t drink coffee. Never have! Thanks
  10. S

    Als fear Got me worried sick

    Hi I have been on beta blockers for 3 months with no change to fingers twitching like this.
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