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  1. C

    Cristin's Ulf

    I can't believe I'm typing these words. My husband Ulf suddenly died today nearly 7 hours ago. I don't understand what happened.. he finally agreed to use the bipap last night for the first time for a few hours. I had checked his osat level and it was 88 when laying down. When I put the bipap on...
  2. C

    Family dealing with changes

    Hello: Sunday evening, my husband was standing at the bathroom sink for me to brush his teeth. After it was done, he had extreme difficulty turning away from the sink to the rollator to walk back to bed. I foolishly believed him when he said he had been standing too long and that's why he was...
  3. C

    Mood changes

    Hi all, This is sort of an update post (last post was in the Newly Diagnosed) but I wanted to move my thread to a maybe more appropriate category. My husband has gotten a second opinion from the chief neurologist at the University of Münster in Germany, where he is from. He was also able to...
    • Cristin P
    • Thread
    • arm cals cbd death depressed diagnosis early family life mnd neurologist newly diagnosed nurown oil physical therapy progression rilutek second opinion support tests thc trial update wanted weakness worried
    • Replies: 11
    • Forum: Current caregivers
  4. C

    Pending diagnosis

    Hello, My husband is 39 and was told yesterday by the neurologist after his EMG that he has a motor neuron disease but doesn't know which one yet. The neurologist told my husband that the disease could stop with just the weakness he's experiencing only in his left hand, or could get worse, he...
    • Cristin P
    • Thread
    • als diagnosis emg hope mnd motor neuron disease neurologist pending diagnosis second opinion weakness
    • Replies: 7
    • Forum: Newly diagnosed
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