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    Insight/input/billyd

    As some of you know I have run the gamut of doctors and tests since my illness last summer that began with severe cramps and fasiculations in both calves and feet. Later in the fall I began to occaissionally choke on saliva and have some minor difficulty with swallowing. Severe anxiety and...
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    Hi! ~ new here

    Hi Diane, just some general info, I am in the undiagnosed with neuromuscular symptoms group but have experienced swallowing difficulties along with other symptoms. A modified barium swallow test is one tool used to evaluate swallowing. My neurologist ordered it. It is done with a radiologist and...
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    Methylmalonic acid & Billyd

    Al, I live near the coast just inland where we consider the mosquito our state bird.
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    Methylmalonic acid & Billyd

    Thanks Al, I haven't tried the quinine but my gp suggested it. The neuro told me that if the neurontin did not work I could try the beclofen. Any side effects to that? Kelly, just for the record I have not been diagnosed yet, still in the wait and see mode with a 7 month symptom period and...
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    Methylmalonic acid & Billyd

    Hi Kelly, I started with one 300 mg/day for a week then 1200 mg/day in 4 doses of 300 mg. they told me I could take up to 3600 mg per day but I do not because of the side effects even at lower doses. The klonopin is the only thing that helped me sleep. I don't sleep continuous, but 2 1/2 or 3...
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    Methylmalonic acid & Billyd

    neurontin Thanks for the info, I did a search today on this site and it seems that quite a few people had problems with it. I had been taking small doses of klonopin but only to help with sleep. Leg cramps are pretty constant now, mostly in calves but up to thighs at times. The B-12 hasn't...
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    Methylmalonic acid & Billyd

    I have not posted in a while. I am in the re-check every 3 months turnstile with the neuromuscular doctor. Living with the cramping legs, twithching toes and swallowing issues for now but at least getting some sleep and food. Got a call that my Methylmalonic acid level was and is high so I...
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    Update billyd

    It seems that I have joined the ranks with Cindy, CrystallK and others who have serious symptoms and no concrete diagnosis which I guess is a good thing. I was seen by Dr. McCluskey at Penn clinic in November who felt the fasics and cramps in the legs were cramp fasic syndrone. Because of some...
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    question on bipap/cpap

    cpap I feel better knowing that there is a reason something is waking me up, other than just anxiety. But like lhagsir said, I don't even know what the problem is or more importantly, how do you tell. PCP said "you have osa and you can treat it if you want". McCluskey said "you have osa but I...
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    question on bipap/cpap

    Decided to post in quest of info. Result of my sleep study was some obstructive sleep apnea that neuro said was not from diaphragm weakness. I go for swallow study Wednesday due to that issue. I do not snore and am not overweight so am curious about causes of obsa and if anyone has knowledge...
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