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^Thanks for replying. It's tough, because even after today, questions continue. They are super unfamiliar with Lyme here. infectious disease doc said Lyme could cause all my symptoms, but maybe not. Recommended I finish my doxy and wait a few weeks to see if I keep improving. If I plateau, he...

I spoke with a neurologist on JustAnswer, and he said early ALS couldn't be ruled out. He knows about the Lyme diagnosis, but I told him every muscle in my body has been twitching and it's not going away. He seemed a bit more optimistic when I said they did my worst limbs during the latest EMG...

Day 13 on doxy, foot is still going crazy. https://www.youtube.com/watch?v=UzH25jUs3U8. Whole body and mind not working too good.

Hi Kristina, Yeah the difficulty swallowing has happened for a couple months. I go into coughing fits sometimes up to an hour after eating too, and sometimes throw up. It’s been pretty scary. If I swallow even saliva, you can like hear it go down after a second (shudder) I have 24 days of doxy...

Difficulty swallowing Hello, Last week I was diagnosed with, of all things, Lyme Disease. In Ohio. And I don't go outside. I'm an official CDC case. Before I lose everyone... My limbs EMGs have both been good, but I worry about bulbar-onset. I have been noticing swallowing difficulty with...

So after six months of thinking I was dying, my Western Blot is positive for Lyme according to the Mayo Clinic. Six months. Thank you to all who answered. It means so much to me.

Thanks Mike. I’ve followed you on this forum a while, and you are fantastic at responding. Some twitching in my left foot was recorded but not thought to be significant. My neurologist confirmed a “normal” EMG. I am getting MRIs and swallowing tests tomorrow. Still nervous about “bulbar” function.

Thanks Laurie. Even the bottoms of my feet have been twitching. I’m so scared for tomorrow.

Laurie, Thanks so much for your reply. It’s a long story, I know. My neurologist said I was less of a horse and more of a zebra, meaning I have such wide ranging symptoms that whatever my diagnosis is, it will be something rare. The ones pointing to ALS would be difficulty walking, muscles...

Hello, My story begins in January or February of this year. My left foot would fall asleep very quickly and that leg was numb. I'd had a previous dvt and high d-dimer, but no clot was found in that leg on Feb 1. I began to have long periods where my heart would race and pound hard for no...