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I was told I was too advanced and rapidly progressing for meds. My breathing is a struggle. I feel out of breath most of the time. Tuesday I get a cough assist and external vent. I have to have a CT of my stomach because I had a lap-band in 2011, then they are going to put in a peg-tube...

So much has changed since I first sent that message on 7/22/18. Then I had right leg weakness and left arm weakness. Thank you all for the support to seek a neuromuscular physician. I went through MRIs, EMG, nerve conduction and was finally diagnosed on 8/30/18 with ALS. This in part because...

Hi Nikki, Thank you. My mom passed away from breast cancer at 41. All three girls died before 60 from cancer, which is from my maternal grandmother's side. I work at a cancer center and have had the genetic testing and did not inherit that mutation, thankfully. So there's no way of knowing...

Hello all, First I want to thank you for the plethora of information I found in the *Please Read* posts. It answered many of my questions. I also found some helpful info reading other posts. I am a rationale 47 year old Registered Nurse and am working on my PhD in nursing so I don't want to...