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  1. L

    One month tomorrow

    Hugs to you on this anniversary hon.. I'm sorry that you're going through all this; I hope you're managing alright today. The grief tends to hit you at the oddest and most inopportune of times.. in many ways it isn't what you expected it to be, is it?! Sending warm thoughts your way in that you...
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    Just need to talk

    Hi Laurie- I'm glad you found this forum, it seems to be the kind of place you need right now with like minded thinkers facing similar dilemmas and providing incredible support. You will draw a lot of support from the amazing people on this forum. This is actually my first post on the forum...
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    Burnout and stubbornness

    Hi again- thank you again for your suggestions. This is where we keep hitting that large obstacle. My parents are of the variety to refuse outsiders from coming into their home at all costs. I have no doubt that if I were to go ahead and line up help anyway, they would not open their doors to...
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    Burnout and stubbornness

    Thank you mare and indigo... I appreciate your article and your comments. I understand what my mother is going through.. however, I'm not sure where to go from here anymore. So many times I have tried to sympathize, help more, give her more breaks.. but she sees it as if I am doing less and...
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    Burnout and stubbornness

    Hi all, First, I wanted to wish you all a Merry Christmas. I hope everyone has a happy, peaceful holiday season out there. I have a question.. and a few comments about caregiver burnout. I think my mom is finally there. The short version of the story is this.. dad has been diagnosed for almost 3...
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    need to get it out..

    Hi everyone, I'm here sitting at work, and feeling a little overwhelmed. Figured I'd come here to get out a few things so I don't take it out on unsuspecting co-workers! I feel so overwhelmed with everything these days.. I feel so completely stupid at work, my mom and I are the primary...
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    ALS, MND, or MNN

    Hi all, I have a question for anyone that knows: I have done a lot of research over the last two years, considering these three 'categories'... it's been two years and several tests and trials, as well as several visits around the country to various specialists.. however it seems as though the...
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    Just looking for some support....

    thank you ireland... sooo good to hear you put in words how I think we all must be feeling, but somehow are afraid to say! It's so true, you hit the nail on the head when you said it feels like you've made decisions, sacrifices, that you've been somehow hard done by, that you've had to put your...
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    Just looking for some support....

    Hi Caroline- Oh, honey, I'm with you. I'm 28 and pretty much feel the same way this week with my Dad this week! :) I don't know how to draw strength.. it comes and goes, and we just do what we have to do. But please don't feel guilty for thinking the things you are thinking: it isn't right or...
  10. L

    accepting homecare?

    thank you, both of your responses are very helpful.. I think it would be interesting to start a thread to see just what each person's personal limits are/ were, and then to see how we surpass them and surprise ourselves, only to make previously apparent 'obstacles' turn into an everyday...
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