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Hello, My name is Manuel Rosales. Sadly, my brother Douglas Rosales died of ALS two years ago. He was diagnosed at 26 and died at 32. Of course, the idea that I might have this dreaded disease always lingered in my mind. About eight years ago I noticed some twitching on my left or right...

Hello, My name is Manuel Rosales. Sadly, my brother Douglas Rosales died of ALS two years ago. He was diagnosed at 26 and died at 32. Of course, the idea that I might have this dreaded disease always lingered in my mind. About eight years ago I noticed some twitching on my left or right...

I am wondering if anyone has been denied long term care before they were diagnosed with ALS. I have a brother who has ALS. I freaked out at first and told my neurologist that I had twitching. ALS was ruled out and he wrote a letter. This was two years ago. I was denied and told to wait a year...

Hi, My brother has been battling Bulbar ALS for four years now. Lately, he has been getting fevers, sweaty hands, stomach aches, and he gets dizzy. He was in the hospital for four days and he was just taken back today. Do any of you have any knowledge to share. It sounds like some type of...

MY BROTHER HAS BEEN BATTLING ALS FOR 4 YEARS NOW. HE JUST TURNED 30 YRS OLD. HE SENT ME A TERRIBLE EMAIL THE OTHER DAY. HE SPENT 4 DAYS IN THE HOSPITAL BECAUSE HIS HEART RATE DROPPED TO 3O BPM. HE ALMOST PASSED OUT BEFORE HE WAS RUSHED TO THE HOSPITAL.... HERE IS WHAT HE WROTE: I have...

Hello. I have a brother who is not 28 and has had ALS for about 2.5 yrs. He has difficulty sleeping. He has a medical bed, a soft pillow, but he still needs to be adjusted every 30 to 45 minutes. I need help. Do any of you know of anything that I can do to ease his sleeping discomfort or...

I have had several posts before, but this is my first in while. I have had an emg and it was negative. I have a brother with ALS. I had a CPK test and the levels were elevated. For this reason, I was denied life insurance. However, that is another issue. I just had another CPK and I know...

Hey gang, It has been stressful the last couple of days. I will keep this short. I have a bro. who was diagnosed at age 26 with Bulbar ALS. Naturally, I go get tested. I thought I had some symptoms, but I think that it is all anxiety and stress. So, my EMG and blood tests come out negative...

Hello, My name is Manuel Rosales. My previous quote informed you that my EMG came out negative. However, I am getting more twitching on other parts of my body that I did not have before. How I did not have some twitching during the EMG is beyond me. I showed the neuro some of my twitching...

Hello, My name is Manuel Rosales. My previous quote informed you that my EMG came out negative. However, I am getting more twitching on other parts of my body that I did not have before. How I did not have some twitching during the EMG is beyond me. I showed the neuro some of my twitching...