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Hi. I am not on any Doctor prescribed medication excepting recent ropinirole . My doctor is fine with me taking melatonin. It does help with my sleep as does Ropinirole. No side effects for me anyway with any of my tries so far. If I didn't try I would just wither and die. No offence intended...

Melatonin a decent sleep aid and maybe more ? I take 24mg before bed it is apparently neuro protective, anti ageing and more . I will point to an e book by Jeff T Bowles. I will link an interesting blog if allowed below. It is about Alzheimers but the comments are worth reading.. Best luck all..

Hi Vincent Hi Tillie. Thanks for your Oxygen warnings. I will repeat This is not Oxygen therapy or the amount I try 4 puffs will not trick my body in any way. I go on feelings and I have no bad feeling that this is a problem. Some of us who are fast track \ will try maybe outside of the box...

Hi Darrell. My biggest burden has been weariness. I have stopped showering and do a flannel wash which leaves me clean enough but does not take all my energy. To try to help I have taken numerous supplements which to be honest have always given me some hope but no respite from the weary . I...

Hi Jethro. I have bulbar also along with my legs and Arms. Since Bulbar started with slurred speech in January 18 my appetite has been off but I do still like sweet things Honey ice cream etc. I have the C9orF72 gene anomaly and recently read somewhere about Lipid build up restricting sugars...

Hi Cherise77. The research is definitely worth a read. I posted this over an hour ago but my posts are held back with no civil explanation. Best luck and Take care.. TIANDB

Hi Mike, I most certainly agree about the clinical Data. Is it you who holds my posting back for hours and never a chance to edit if a misspell ? I have fast progression ALS I have not time for anyone's negative slant on things, Moderator's if they are giving precious time should try to be...

I looked on the Charlotts Web USA site. To Note: All their products are hemp based, There are four Oils and capsules and one pets OIl. There strongest CBD content oil is Max strength @60mg/1ml -- ( 120mg Hemp Oil/1ml ) = 6% in the strength scale. Next higher CBD content is Original...

Hi BFTTE. So from start ALS July 2015 (48) - until start Radicava 9/17 (44) Now 10/18 (41)....Still in the 40's after Three years is indeed slow progress. Lucky to be in the small % benefiting from Radicava if that is so ? I wish him well. <mod: link removed>

Hi Greg. I buy 25% CBD in 75% of Hemp oil with sesame oil as a carrier 30ml so 7500mg I take roughly 1ml ( 250mg) a day in four doses under the tongue 0.25ml. Complicated figures all our hemp CBD comes in % strength in a carrier oil. If you look on ebay uk site or UK amazon you will see what I...