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  1. HopeNPrayer

    Saliva Medication Advice

    Great tips :) I am trying to watch my hydration, I am guiltly of drinking too much caffeine at times. I noticed when I went to the ocean this summer for a long vacation, it went away almost completely. I would try to go sit at the ocean deck and breath deep. A saline nebulaizer sounds...
  2. HopeNPrayer

    Saliva Medication Advice

    Hi Nikki & Nona, Thanks for your imput. I'm not currently drooling as of now. It seems to have just gotten thicker and more excessive. I've heard good things about Robinul. Yes, it's progressing at a faster speed I believe, and you are right about having a feeding tube ahead of time. I'm...
  3. HopeNPrayer

    Saliva Medication Advice

    Hi everyone, Just thought I'd see what everyone is takening for salvia. What seems to work best? Any side effects with any of them? Also any natural tips in addition? I use a lot of honey and lemon...and tea of course. Musinex? When do you seem to have it the most? I am waking up...
  4. HopeNPrayer

    Options for home care on Medicaid

    Hi, I am trying to figure out if I have no choice but to move in with my parents, or if I will be able to swing a caregiver. My home is paid for, no mortage. I haven't been able to work in awhile, and have gone through a lot of savings. My general quesiton is, do you think I would have luck...
  5. HopeNPrayer

    HopeNPrayer- Advance Directive discussion

    Also, Thanks Karen, your informaton helped me find the wording for my AD. Thanks Clearwater, suggesting Affected's subfourm helped alot too. Igelb, you helped me understand the trach process more. Mytmouse, I feel very similar, I don't want to be a burden, esp with no hubby. And don't...
  6. HopeNPrayer

    HopeNPrayer- Advance Directive discussion

    Hi Everyone, Thanks so much for your feedback, it really helped. I took care of my AD this week. My lawyer was able to insert/include the ALS specific AD, thank you Kim. It also helped me think through situations, a great worksheet. Also, I included that to be sure my breathing is above...
  7. HopeNPrayer

    HopeNPrayer- Advance Directive discussion

    Hello there, You are all in my heart. I haven't been on here for awhile. As I sit here working on my Advanced Directive , I realize I need help from this community. Where to begin? All I know is that I am more interested in quality of life over extending it. I just want to be comfortable...
  8. HopeNPrayer

    Hi Nikki, Thank you for your advice, I appreciate it. Yes, I have asked her about how to...

    Hi Nikki, Thank you for your advice, I appreciate it. Yes, I have asked her about how to approach disability and that I was confused as to which way to go, she said that she would be comfortable stating that I had "probable als" at this time. I keep asking her why not at the least a follow...
  9. HopeNPrayer

    Hi there, I was wondering if anyone has applied for disability under the Compassionate...

    Hi there, I was wondering if anyone has applied for disability under the Compassionate Allowance Act with a "probable" ALS diagnosis. My neurologist has stated a strong probable, I haven't had an EMG since last April. Trying to get into see a specialist...there is a long waiting list as many...
  10. HopeNPrayer

    Probable Diagnosis

    Hi, Thank you for getting back to me and sorry for your loss. I'm sure you are able to help out a lot on here! Thank you for giving back. Neurologist said that my initial exam appeared to be CNS, and of course MS made the most sense. My gut and her response and summary of my abnormal EMG...
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