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    Pulmonary Function Test question

    Thanks for the information, its very helpful! Its funny because my husband still can hike ten miles and sleeps on his stomach, and pretty much is probably more fit than most men his age (minus his arms and hands). I wonder if starting off so fit is why neither of us notice any breathing issues...
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    Pulmonary Function Test question

    Hi all. My PALS just had his first pulmonary function test (attached). I am curious how to interpret it. His neuro gave him a quick call and said he qualifies for NI ventilation and that his number was 38%. While I am sure they will explain it at our next appointment in a couple months, trying...
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    CALs Intro

    I joined this forum awhile ago but am just seeing the CALs thread so thought I would reintroduce myself here. I'm another Nikki. I'm 37. Two kids - 9 and 11. My husband was diagnosed with ALS in March 2018. He is what I would call slow progressing, but then again, I have met people on an even...
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    Advice for home renovations or adaptations

    Laurie, thanks for the feedback - its hard to know how things are going to progress and listening to other people's experiences has been super helpful. I did do an intro on the new members post a couple months ago but I really don't know how this forum works quite yet. We know we will need a...
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    Advice for home renovations or adaptations

    My husband has what we think is a slow progressing form and currently it is really only impacting his hands/arms/shoulders/tongue. His legs are just as strong as ever. So the progression might dictate what you do for a remodel? I don't see the need to put grab bars in as his hands and arms are...
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    lurking CALS

    Hi, I'm Nikki. My husband was diagnosed with ALS last December. I have spent the last year lurking on this site and finally feel like I am getting to the point where I may want to start asking questions. My husband Colin is 51. I am 36 and I have a 9 and 11 year old whom he is stepdad to. He has...
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