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  • Users: Grhbr
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  1. G

    Newly diagnosed

    The travel would be donated miles from a friend who travels for business and staying with friends. It will also mean selling possessions which Im happy to do. They need to go anyway.
  2. G

    Newly diagnosed

    Surprisingly, no word yet from the neuro. I called my PCP and his office said I must come in in order to get a prescription for a BiPAP as I'm on an HMO plan. I made an appointment, the first available was Friday at 4 and I'm attempting to get a ride. I'm still very weak but my breathing is...
  3. G

    Newly diagnosed

    Nikki Thanks so much for the fantastic advice. I just got 5 hours sleep for the first time since Wednesday. I feel so much better since putting down the oxygen! I was starting to become quite desperate thinkig this was my new normal. I will be texting the neurologist today. He's great and...
  4. G

    Newly diagnosed

    It's very difficult being so sick and having to do all these tasks. I also have some memory issues left over from chemo so I haven't really got it all together. What a sad sack I am!
  5. G

    Newly diagnosed

    All of the doctors at the hospital that stopped in said they had never had an ALS patient. They wouldn't let me leave without oxygen as I failed their test. Maybe that's why I have a terrible headache and nausea? Am Im so weak. Haven't eaten much in last two days, just pudding and yogurt for...
  6. G

    Newly diagnosed

    Oops, I meant to say the application for medicaid
  7. G

    Newly diagnosed

    I apologize for not responding to everyone individually. My Neuro and oncologist thought it be a good idea to get IVig (immunoglobulin ) infusions to boost my immune system because my white cell count was low. After the 2nd infusion, I was so sick I called an ambulance and just got out of the...
  8. G

    Newly diagnosed

    Thanks to everyone who responded. Clearly I need to do some additional research so I know what I'm talking about. So much to take in and I'm in a fragile state of mind right now.
  9. G

    Newly diagnosed

    Thanks for responding, Kim. Florida is definitely not a place to be poor or sick! An MRI showed lesions on my brain which can be a sign of lymphoma recurrence so I actually got my diagnosis at Moffitt . The neurologist, Edwin Peguero did call USF but a month was thefirst available. Thanks for...
  10. G

    Newly diagnosed

    Thanks so much for your response. Yes, those are the tests I mean. I'm still new to this. I'm hoping when they look at my breathing and swallowing I'll get a better idea of how much time I have. I'm not hoping for ways to prolong it. After going through cancer treatment on my own, I'm done...
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