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  1. John1

    Electric Wheelchair for House-Suggestions??

    If you want real mobility in the house consider a small mobility scooter like a Pride Go-Go as an interim device before a wheelchair. They have several advantages over a wheelchair including much lower cost ($1000), lightweight and easily moved to a car by a caregiver, easy to get in and out of...
  2. John1

    Breathing got better?

    I wouldn't read too much into the 6% improvement. As others have said, time of day, how you feel that day and how you take the test can all affect the results. I have seen a modest improvement a few times at 6 month intervals but the overall trend has been down.
  3. John1

    What do you do for exercise?

    "I have a theory ( mine only - large grain of salt) that those with upper motor neuron dominant ALS fare better with the higher levels of exercise". Interesting idea Nikki. I am UMN dominant with very few fasciculations. I have a recumbent exercise bike that I use a few times a week for about...
  4. John1

    Sleep Number bed or other adjustable option?

    Hi Buckhorn, I purchased a TEMPUR-Ergo™ Plus queen size Adjustable Base a year ago. Bought it locally (in Arizona) from Sears and it cost $1400 plus taxes and included delivery and setup. The latter is not minor as the bed is extremely heavy. We use our existing mattress. Pluses: - The remote...
  5. John1

    Falls with compromised diaphragm

    Hi Starente, I certainly echo Barbie's recommendation to buy a mobility scooter. They are cheap and extend one's mobility tremendously over walkers and canes, both of which I was using when I rented one to try it. I was sold. My personal preference is a 3-wheeled Pride Go-Go Elite Traveller -...
  6. John1

    Anyone purchased a wheelchair van?

    Hi Starente, I had good luck using http://disableddealer.com/item.asp . You can sort vans by price or state. There are both private and dealers selling there. You don't need to feel restricted to buying locally. Ironically, I live in northeastern Canada and the van I bought was in San Diego...
  7. John1

    What do you do when your wheelchair breaks?

    I still use scooters. At home I use a Pride Go-Go Elite Traveller and have an older one for backup. They are very inexpensive compared to wheelchairs.
  8. John1

    Oral health and pneumonia

    We all know what a threat pneumonia poses to PALS. I had a visit with a speech pathologist today and we discussed a broad range of ALS-related matters. She asked me whether I had suffered from pneumonia. I replied that I hadn't and in fact had developed almost no colds in the past several years...
  9. John1

    Trip Report: Yellowstone

    Thanks for the wonderful description. We'll be there for a few days in July - a very quick visit - and you've increased my anticipation. We won't have our van, only a rental car from Calgary, so I will tour Yellowstone on my little Pride Go-Go scooter.
  10. John1

    Neuralstem stem cell triaals

    Thank for the link Nikki. It sounds like they work for some and completely miss for others.
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