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    Free Supplies in Minnesota/western Wisconsin

    We have gloves, wipes, chucks, briefs (large), barrier cream, etc. free to whoever can use them in the area. Just send me a PM. We also have various tube food if you're interested.
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    Dad Dancing Again in Heaven

    My Dad slipped away peacefully on Wednesday, Jan. 30. ALS took his ability to move, to swallow, to speak, and finally to breathe, but it didn't take his joy or his strong faith. Diagnosis was the end of December 2017, though he'd had symptoms for at least two years prior. Possibly...
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    Getting Help, Caregivers

    We have a mix of ways that we have help. I thought I'd share them. I'd also be interested in hearing your ideas. For reference, my Dad is mostly immobile now, (diagnosed the end of 2018.) All transfers are with a Hoyer lift. He does get transferred to a commode or his PWC, (mostly if we're...
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    So much air!

    My Dad got his tube in early December. We've tried both gravity and now pump feeding. He is just not comfortable. He can't get down more than 3 cans a day without being miserable. We've tried the first 1.5 calorie formula, a higher 2.0 calorie formula, and a 1.5 with lower fiber. We are...
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    Help! Strength: Conserve or Use It or Lose It?

    My Dad was diagnosed in Dec. 2017, with limb onset, starting with his hands / arms. Yesterday evening, he was unable to stand from his lift chair for the first time. My husband and I drove over and were able to get him out of it with the lift, (after a youtube troubleshooting video. It was...
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    Introduction: Dad Diagnosed with ALS

    Hi, I'm new here, so I thought I should introduce myself. After going from doctor to doctor for over a year, my Dad was diagnosed with ALS at the end of Dec. 2107. (I would say his symptoms started in about July 2016.) From what I'm reading it seems to be limb onset, with the greatest affect...
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