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  • Users: NinaP
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  1. N

    ALS and Herpes?

    Anyone has seen or read this new study?? About the Herpes viruses and being connected to ALS and MS?? Anyone read this? Can someone explain it? My mother had herpes zoster about two years before she got sick from ALS and i had mentioned it here. My sister got Herpes Zoster last year too and we...
  2. N

    Hey guys.

    How are you? Crazy days, who would have thought we are going to be living like this? How are you? I miss you all. I have been better, i currently don't work, which is a financial issue but im hanging in there. Im doing better physically, lost weight, walk a lot. Been agonising about Covid and...
  3. N

    Worried again

    Hey guys. How are you? I am ok. I was sick again in August, i had some great vacation and then i got sick, fever again, and finally my tests showed Urinal Infection. I had my treatment and i am better. NarrowMinded thanks for the answer, its not only me you know. My sisters too are scared, This...
  4. N

    Catching up

    Hey guys. Been having some really bad days. Mums 6 months anniversary two days ago. Cried a lot. Very down in general. Fear is getting the best of me again. Everything slips off my hands, even the nails clips, everything slips, like i cant close fingers, cant hold the keys right. Sometimes fork...
  5. N

    Without mum

    So im here. Its been 10 days since mum died. Went to work this week. We did the 3 day memorial and then the 9 day memorial. House filled with people. Yet im missing mum. Especially at nights and mornings. The smiles the goodmornings her phonecalls to work. Strange i didnt miss it all this time...
  6. N

    NinaP's Mom

    My mother died this morning. Just a fyi. I have to arrange stuff. Talk to you later. You got my love.
  7. N

    Update about me

    Since my previous thread was closed i want to post a few new things that have been happening to me. I have started having breathing problems especially at night when i wake up to go to mum who yells. Its like iam out of breath cant get enough air in my lungs. Also i get breathless when i talk...
  8. N

    NinaP's Mother

    Mum can only move her right hand now and that is very stiff right now, she hardly lifts her right leg which used to be so strong. She lost amost everything in 4-5 months. Happened so quickly. We were diagnosed in Larisa in a great University hospital, my younger sister lives there. After...
  9. N

    Question for Cals.

    First of all i want to apologise to Nikki i think my questions kinda angered her? At the newly diagnosed thread. I have searched so many sitrs but every site is so general apart from here. I want to ask the caregivers here were you afraid you are going to be sick too? Or you got sick? I have...
  10. N

    Hello from Greece.

    I really dont know how to begin what to write. My mum was diagnosed wiith ALS in April 2018 after 4 months of tests and visits to every doctor there is. Finally she was diagnosed in a University hospital. We are a veru close family. 5 kids 9 grandkids. We are in a state of shock. Mum was an...
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