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  • Users: firefly34
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  1. F

    Dad died

    Doubt anyone reads this things. Just wanted to mention my Dad passed. Came to this forum a few times for a help and it was much appreciated. His ALS moved so quickly we were unable to get him any of the benefits he deserved for being a veteran. I tried my best for my Dad. My heart goes out to...
    • firefly34
    • Thread
    • als dad death family family member heart life love medical nursing home respiratory respiratory failure veteran wanted
    • Replies: 16
    • Forum: In memory of
  2. F

    Pillows or special equipment?

    Hello, I am posting on behalf of my Dad. He was diagnosed in June, rapid progression, and he is already in a nursing home living out his last days. As his muscles have weakened, he is unable to move his neck. Because of that, his head falls down and to the side (the side of his ventilator...
    • firefly34
    • Thread
    • dad diagnosed equipment last days muscles nursing home pain progression rapid progression ventilator
    • Replies: 2
    • Forum: Tips, tricks, and gadgets
  3. F

    What to expect during late stages?

    Hello, I made a post a few months ago suspecting my Dad had ALS. Six months ago he was up walking, doing perfectly fine. It has been a steady decline to this point, and we have waded through rehab facilities and hospitals like they were hotels. My Dad was finally transferred to UAB Hospital...
    • firefly34
    • Thread
    • als back breathing caregiver dad decline family feeding feeding tube mmn neurologist sole caregiver stages symptom ventilator
    • Replies: 12
    • Forum: General discussion about ALS/MND
  4. F

    Muscle weakness, atrophy

    Hello all, First I would like to say my heart goes out to those struggling with this horrible disease. I’m writing today to ask opinions about my Dad’s situation. I will try to be brief, but thorough. Nov. 2017 - Dad swears he remembers falling while outside, and then getting up and moving...
    • firefly34
    • Thread
    • ability arm weakness atrophy brain breathing christmas emg falling fingers frustrated go away heart mri muscle muscle twitching nose pain power support symptoms test tests twitching urgent weakness wheelchair
    • Replies: 2
    • Forum: Could this be ALS?
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