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  1. J

    Drip

    Try milking a straw My sister has had a PEG for nutrition and meds for 8 months and can take very little by mouth. But by "milking a straw," we can continue to give her small amounts of liquids (a bit of coffee in the morning and a bit of wine at night, with water in between). We use a straw...
  2. J

    What's yours?

    I am CALS for my sister, who is 57 , diagnosed in 3/07 but symptoms probably date back to 5/06. Last month her FVC was 38%. She uses BiPAP about 3-6 hours per night (it gets loose and starts leaking). No mobility except head and slight upper shoulder area. Speech unintelligible. Swallowing...
  3. J

    Speaking Devices Etc.

    ERICA system My sister is using the ERICA system (though still with head control and not needing to use the eye gaze technology part of it). It isn't a perfect system, but it is immensely helpful. The software is loaded onto a small tablet computer (touch screen for us caregivers). The...
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