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My husband received a letter from his insurance company advising him Riluzole will have a higher copay. They encouraged him to speak to his doctor about his current medication and whether a lower cost alternative might be right for him. Am I missing something.....there isn't an...

Please help me understand why a person who has been diagnosed with als needs a follow up emg a year later? Obviously the dr wants to check for progression ---are there any other reasons??? Sassy

Do they sell an afo that can go underwater? My husband had difficulty in a pool without his afo. Thanks Sassy

Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment. Thankfully -we have great medical insurance at this time- so finances aren't the...

I need some advice. My husband was diagnosed in January and fortunately has slow progression with the thought it may be flail leg. Today with temperatures in the high 90's, he decided to golf with friends and passed out. He was transported to the er with facial lacerations which required...

My husband just got his first AFO and I was wondering about shoe suggestions. The provider recommended sneakers but would appreciate any feedback anyone can offer. Thanks Sassy

A neurologist told my husband that high cholesterol may slow progression. Has anyone heard of this????

What criteria is used to differentiate between limb onset and flail leg. Is progression or lack of it the only measure? As always, thanks for your help.

My husband was formally diagnosed with ALS in February of 2018, although he has had foot drop for over two years. We have been told his progression is slow and did get a second opinion at a highly regarded ALS center. I think we were both afraid to ask many questions about his progression but...