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    Update on my mom

    I just wanted to quick update on my mom, who was misdiagnosed 5 years ago with Alzheimers. She was given a revised diagnosis of progressive supranuclear palsy (PSP), another neurodegenerative disease. I originally posted about it here...
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    Mom has been wheelchair bound for 2 years - suspect misdiagnosis

    Thanks for responding! Ultimately her neurologist made the diagnosis after a long suspicion of her PCP. The diagnosis came after 2 MRIs w/ contrast and a PET scan. Her MRIs were normal except for the tumors. The only neurocognitive testing that I know she had was in the office with her doctor...
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    Mom has been wheelchair bound for 2 years - suspect misdiagnosis

    Hello, My mother was diagnosed with Alzheimers 5 years ago when she started moving more slowly and making mistakes at her job. She was 62 at the time. They asked that she retire and we all began preparing for living with and caring for someone with early onset Alzheimers. Thing is, the disease...
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    Lip tremors tired tongue

    I really appreciate everyone who's taken the time to respond. I apologise for being so anxious. I'll stick to annoying my doctors. God bless.
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    Lip tremors tired tongue

    I am trying to remain calm while I wait on my next phone appointment with my neurologist. I am very focused on my tongue which I know impacts my ability to really get a feeling for my symptoms. I am so sorry to pose this question here, but my tongue is beginning to look different. I am...
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    IMG_20180324_214718026.jpg

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    Lip tremors tired tongue

    I'm so sorry for coming back. I am having such strange lip issues. My upper lip feels... weird. It feels stiff and I can't pucker fully, but just on the top. I can't suck my lips into my mouth, but really just the top lip. I can still smile, talk normally, etc. It almost feels like the lip is...
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    Lip tremors tired tongue

    Thank you so much for taking the time to respond. I will continue working with my doctor. I was hoping he would just attribute it to IIH but he seemed so concerned that it kind of disturbed me.
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    Lip tremors tired tongue

    To begin with, I have seen a neuro. I have diagnosed IIH (high intracranial pressure) and already had a follow up appointment where I mentioned these new symptoms. I am awaiting CPK levels. About 1 week ago my lip froze. I couldn't move it - it was just my upper lip and it drooped down and...
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