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  1. AngelManFL

    AngelManFL Update

    Good news! Hi Gang! I walked 260 feet last Thursday! Still with my walker - but 260 feet! I am now able to eat and digest food normally again, those supplements worked a lot better than I ever imagined. It is so incredible to actually taste and enjoy food again! I am 80% off all pain...
  2. AngelManFL

    AngelManFL Update

    Hi everyone, Just came back from physical therapy (legs feel like Jello!), but I walked almost 60 feet! with a walker of course - but still on my own! I have been able to keep food down and still digest it pretty well too. I am just over 50% off the narcotics - but taking predinisone and...
  3. AngelManFL

    AngelManFL Update

    Hello to all, the Sulfasalasine was a bust... so I am back on the Celebrex and taking the injections of Humira. The difference is remarkable, the swelling and inflamation in my tailbone and spine is so much better and the pain is so much better too. I go back to the cancer center for scans...
  4. AngelManFL

    AngelManFL Update

    New Beginning What a diffference ten days can make.. they new med mix is actually working! I can stand up without crying and actually lay down in bed without crying! and we have already reduced my pain meds by 50%! The Cancer ctr wants a scan of my abdomen, an EGD and colonoscopy done. But...
  5. AngelManFL

    AngelManFL Update

    Thank you Crystal, It actually went very well - I honestly believe that they have finally found an answer for me - but I am trying not to get hopes up too high, but I just can't help it! It is called Ankylosing Spondylitis, he put me on a combination of two meds (prednisone 20mg twice a day...
  6. AngelManFL

    AngelManFL Update

    Thank you to everyone.. I just want to thank all of you for your support and love and prayers and concern... This is my first and only forum I have ever been a part of and feel so blessed and so grateful to have stumbled across such wonderful loving and caring people.. I thank God for all of...
  7. AngelManFL

    AngelManFL Update

    Crossroad.. Thank you Crystal, I hope he is the right doc too.. I meet with another Dr over in Tampa next Thurs to check on the spondylosis thing too.. I just refuse to believe that I might have ALS and just keep praying and searching for something from someone or anyone who can find...
  8. AngelManFL

    AngelManFL Update

    Still Searching Hi, I'm sorry if I always sound negative, but it has been a very tough week. I just don't seem to have the drive or strength to keep up this fight when I constantly hit brick walls.. My Dr did refer me to new a doc(a Hematologist) at the Florida Cancer Institute, I met with...
  9. AngelManFL

    AngelManFL Update

    Thank you Irma and Capt Al, Today has been a rough one, was not able to get out of bed, missed work.. Hopefully tomorrow will bring more strength and less pain. This is actually the first day of work I have ever missed so far w/o an appt or test. I woke in just too much pain. Slept most of...
  10. AngelManFL

    AngelManFL Update

    Thank you Dona, I am very much considering going somewhere else - just do not know where to go.. there is a Moffitt Center in Tampa, FL which is very near to me, but I do not know if they see cases like mine - I think they specialize in cancer - but I will try and look into it. I'm hoping my...
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